Rep. Tom Reed (R-N.Y.) recently introduced a bill that would make it mandatory for researchers to publish all data from cancer research clinical trial results to foster collaboration and cutback on duplicative efforts.
Reed worked with Camp Good Days and Special Times Chairman Gary Mervis to draft the Clinical Trial Cancer Mission 2020 Act. Mervis’ non-profit organization engages people affected by cancer through year-round camps and activities.
“Every week, 11,000 Americans die from cancer,” Reed said. “We need to all be on the same page and working together to give patients a fair chance at beating cancer. Making clinical trial results available to all researchers will help improve care, increase the chances of finding a cure and protect taxpayers from funding duplicative research.”
The bill would establish a national clearinghouse under the National Institute of Health that would levy penalties for researchers who don’t comply with the reporting requirements.
Congress allocated a $1.2 billion increase in research funding for the NIH last month with the goal of ending cancer by 2020. Reed also organized a clinical trial workshop within the NIH.
“This workshop has been tasked with exploring innovative and more consistent and reliable ways to track and monitor clinical trials,” Reed said. “Thanks in large part to the support from my New York colleagues on our clinical trial legislation, we will all benefit from the workshop’s findings due to Congress this September.”